ROSCOE, Ill. (WIFR) -- Diagnosed with a terminal disease at only 27 months old, Livia Hubert needs constant care. Sanfilippo Syndrome is a genetic deformity, and it has slowly taken away many of her abilities.
"When she was little, she would talk and play and run and interact. And slowly, over time, she's pretty much lost every single ability," says Kelly Hubert, Livia's mother, who spends a lot of her time at home caring for Livia.
Kelly has several weekly obligations that require her to leave her house, but since she isn't able to leave Livia alone, she relies on the support of volunteers from an organization called JourneyCare, who spend time with Livia while her family is away. JourneyCare works with 3,000 patients a day across 10 counties in the Chicago area and northern Illinois.
Right now, JourneyCare is in need of volunteers in the Rockford area. Volunteer opportunities include everything from patient care to office work. There is a training opportunity coming up on February 8th at the Rockford office at 483 N. Mulford Road, Suite #1. For more information and how to sign up, please click on the attached related link.